In-home and community care

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Many hundreds of thousands of older and infirm Australians elect to receive in-home and/or community care in preference to moving to an aged care facility, in part because it gives them more freedom.

If you or your loved one/s are in this situation – or you provide care in the community – we invite you to explore and contribute your observations and ideas in this section of the Your Say on Aged Care website.

If you or a loved one has been in an aged care facility – or you have worked in one – we invite you to explore this section and have Your Say on in-home and community care in general or via any of the following sub-topics:

Care recipients’ rights and responsibilities
Medication management
Meals (including fluids)
Communication challenges
Companionship
Personal care
→  Hygiene, sanitation
Personal safety & security

→  Financial abuse
→  Falls, physical harm, abuse
→  End-of-life and palliative care
→  Dying at home
Accessing home-care packages

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Privacy statement

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Older People Speak Out (OPSO) – the publishers of the Your Say On Aged Care website – will only collect, store, use, disclose and destroy personal contact information in accordance with the Privacy Act 1988.

Schedule 1 to the Privacy Act 1988 contains the Australian Privacy Principles which regulate the way in which organisations such as OPSO can collect and use personal information.

The Your Say On Aged Care Privacy Policy below sets out the way in which OPSO complies with these principles.

Privacy Policy

Any time you complete a submission to the Your Say On Aged Care website – via the provided online or downloaded form – you will be prompted to provide personal and contact information.

Whether submitting on your own behalf, or on behalf of another individual who no longer has the access, ability or capacity, you will be required to provide personal and contact information relating to you as well as any individual/s for whom you may be acting.

Personal and contact details will be kept confidential, unless – in specific cases – you otherwise direct or grant permission for its release.

This personal and contact information may be used by OPSO to clarify or verify details provided.

Personal information will not be shared with a third party unless it is lawfully requested or there is an immediate risk to one or more individuals.

On the form, you will be given the option to receive communication from OPSO in the future and invited to become a member. You may accept or decline either offer.

In line with legislative requirements, OPSO will not use your details for communication unrelated to the Your Say On Aged Care project without your express permission.

OPSO will only use information you provide to external parties where such use is lawful.

If accidental or unauthorised use – or disclosure – occurs, OPSO will act quickly to rectify and remedy the situation.

All reasonable steps will be taken by OPSO to protect your personal and contact information from misuse, interference, loss, unauthorised access, modification or improper disclosure.

  • All paper files will be secured in locked cabinets
  • All information stored electronically can only be accessed by authorised OPSO personnel who have been apprised of their obligations under the Privacy Act
  • Our computer systems and databases are protected via firewalls, intrusion detection and other technologies.

Your personal information and contact details will be retained separately – for the duration of this project – from the descriptive content you provide that may be used for publishing online.

With any content you submit that is intended for publication, you may elect to remain anonymous or to use one or more suitable pseudonyms, however, you will be required to indicate the region from which the post is being made. This detail will be included with your published content.

At any time, you may request to access personal information held by OPSO about you or the person/s for whom you are acting and you may request correction of any inaccurate details.

The lifespan of the Your Say On Aged Care website is intended to be limited, with its closure likely to be at the end of 2018, unless otherwise required or notified.

At the time of the website’s closure, all personal information provided will be destroyed unless you have given permission for your details to be used for other purposes (such as receipt of OPSO emails or requested OPSO membership).

Your say on aged care form

PLEASE READ BEFORE COMPLETING FORM FIELDS:

      • This form comes in two sections
        • Fields 1-10 contain contact information that
          will not be published without your prior permission
        • Fields 11-15 contain information that you give
          permission to be reviewed, edited if necessary, and published
      • All required fields must be completed before you submit
      • Before completing the form below, please read the site’s Submission instructions
      • Reminder – information provided for publication may be edited
      • SPECIAL NOTE: Should you need to complete the details off-line,
        please download the form here and mail your completed form to:
    • Your Say on Aged Care
      c/- OPSO
      PO Box 1037
      Mt Gravatt Qld 4122.

      YOUR SAY ON AGED CARE FORM

 

Copyright

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© Older People Speak Out 2018

While OPSO is the author of this website, it is immediately placing its textual content in the public domain.

Text from this site may be reproduced, with proper acknowledgment of the source, viz., Your Say on Aged Care website (yoursayonagedcare.com.au).

However, the copyright on images and illustrations on this site remains with the photographer and may not be reproduced without written permission which can be requested by contacting him via email.

Related publicity

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Residential care

Understaffing/Ratios

Medication management

Communication

Personal care

Falls prevention

Dementia care

Meals

Mobile services

Intrusions/privacy

Abuse (bullying/assault/financial)

Companionship

Respite services

Deaths

Homelessness

In-home services 

Making a complaint

Costs

Policy and services

NDIS

Resources

Australian Nursing and Midwifery Foundation

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Dementia advice and carer resources

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Dementia advice and information

Caring for someone with dementia can be complicated, uncertain and sometimes lonely, especially in the early days.

Dementia Australia (formerly Alzheimer’s Australia) publishes this helpful online portal for carers of people with dementia.

It features advice, links to support services, education materials, help sheets and other resources as well as a definition of dementia, its symptoms, causes and memory loss.

The organisation also has a National Dementia Helpline (1800 100 500).

It also offers specific, State-based information and services (select your state from the left-hand navigation panel).

Resources for carers

Carers who provide unpaid care and support to family members and friends who have a disability, mental illness, chronic condition, terminal illness, an alcohol or other drug issue or who are frail aged often need information and advice.

Carers Australia is the peak body representing Australia’s carers. It advocates on behalf of carers to influence policies and services at a national level.

It also serves the carers of older and infirm Australians as well as providing support for younger carers and those who care for people from Indigenous as well as culturally and linguistically diverse backgrounds.

Working through its state and territory associations, Carers Australia also provides a wide range of counselling, advice, information and registration services. These include:

It also provides helpful assistance with navigating the NDIS.

Carers Australia runs a 24/7 helpline – 1800 242 636 – and works collaboratively with partners and its member organisations, its network of state and territory Carers Associations, to deliver a range of essential national carer services.

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Where to register complaints about aged care

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All approved aged care providers – residential, community and in-home – should inform care recipients of their rights as well as the ways to lodge complaints.

The first port of call should be the provider. However, if complaints are not being dealt with at that level, they may need to be escalated.

For the past two years, the independent Aged Care Complaints Commissioner has been receiving notifications after the care people have received in residential, in-home or community care – and communication around that care – has broken down.

Those complaints have also come when a person has tried to address concerns but does not feel heard by their provider.

The Commissioner has emphasised the importance of complaints, saying they are “great opportunities to improve care” and are a positive.

Service providers are also encouraged to welcome complaints, “treating them as part of the opportunity to improve their service”.

Complaints can be made by calling the Commission’s national 1800 550 552 number or online via its website (at www.agedcarecomplaints.gov.au).

With elder abuse an issue nationally, each state and territory provides information about abuse and abuse prevention as well as useful contacts and options for getting help. The MyAgedCare website indicates these include:

State/territory Organisation or resource Contact
Australian Capital Territory Older Persons Abuse Prevention Referral and Information Line (APRIL) 02 6205 3535
New South Wales NSW Elder Abuse Helpline 1800 628 221
Northern Territory Northern Territory Police 131 444
Queensland Elder Abuse Prevention Unit 1300 651 192
South Australia Aged Rights Advocacy Service
Alliance for the Prevention of Elder Abuse
08 8232 5377 (Adelaide)
1800 700 600 (rural)
Tasmania Tasmanian Elder Abuse Helpline 1800 441 169
Victoria Seniors Rights Victoria 1300 368 821
Western Australia Advocare Inc. 1300 724 679 (Perth)
1800 655 566 (rural)

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